It is with heavy hearts that our family has to announce that Becky has lost her life fighting this horrible disease. She was so strong and brave during these past years. We all could not be more proud of her. She passed peacefully with her family there.
Our prayer is that no more families have to suffer at the hands of this horrible disease. Thank you to everyone who has prayed, supported the cause, and supported our family. We could never thank everyone enough.
Becky’s dream was that we could find a cure for Lafora disease. Can you help?
Alone, we can do so little . . . together, we can do so much.
What Is Lafora Disease?
It currently has no cure.
Medically known as Lafora Progressive Myoclonus Epilepsy, Lafora is a rare form of epilepsy that strikes children usually between the ages of 9 and 14.
Symptoms become increasingly worse within a short period of time. Symptoms include: seizures, myoclonic jerks, cognitive decline, difficulty walking, severe hallucinations, and dementia. It eventually leads to death within 10 years of the onset of the disease.